The Shape of Agency: Designing for Personal Agency in Qualitative Data Analysis

Computational thematic analysis is rapidly emerging as a method of using large text corpora to understand the lived experience of people across the continuum of health care: patients, practitioners, and everyone in between. However, many qualitative researchers do not have the necessary programming skills to write machine learning code on their own, but also seek to maintain ownership, intimacy, and control over their analysis. In this work we explore the use of data visualizations to foster researcher agency and make computational thematic analysis more accessible to domain experts. We used a design science research approach to develop a datavis prototype over four phases: (1) problem comprehension, (2) specifying needs and requirements, (3) prototype development, and (4) feedback on the prototype. We show that qualitative researchers have a wide range of cognitive needs when conducting data analysis and place high importance upon choices and freedom, wanting to feel autonomy over their own research and not be replaced or hindered by AI.